Posted in Uncategorized | Tagged DeafBlind, guide dog, handicap, Helen Keller, hope, Jesus Christ, journey | 2 Comments »
Well, today is the day I have a new post on Homeschool Mosaics! Please check it out. I think it is pretty interesting and informative. I enjoyed writing it, anyway. LOL http://homeschoolmosaics.com/mama-look-its-helen-keller/
Posted in Journal | Tagged Anne Sullivan, ASL, braille, Dark Silence, Deaf-Blind, DeafBlind, Helen Keller, Homeschool Mosaics | Leave a Comment »
Homeschool Mosaics is my newest writing venture and connects in topic to my posts here at DeafBlind Hope: The Journey. I will be writing there about my journey in the Dark Silence as I teach children and help other DeafBlind people. There are many other readers at Mosaics, all from different aspects of life and homeschooling. Come check it out. We are also having a Facebook Launch Party tonight at 8:00 pm EDT with lots of prizes including those from DeafBlind Hope involving braille and ASL. Definitely show up for that! We have lots of big name sponsors for this events. You don’t want to miss it. Oh, and my column’s name is Homeschool Touches: Living and Schooling Through the Dark Silence.
Ok, here are the links: http://www.homeschoolmosaics.com
and https://www.facebook.com/events/230738350358421/
The Homeschool Mosaics Facebook page is https://www.facebook.com/HomeschoolMosaics. Stop by and LIKE us!
I will be there. I hope you will be, too.
Posted in Uncategorized | Tagged Deaf-Blind, DeafBlind, DeafBlind DeafBlind Hope, Homeschool Mosaics, Homeschool Touches: Living and Schooling Through the Dark Silence | Leave a Comment »
Touch Points
By Renée K. Walker
It is a new year as I write this column. I am thankful for so many blessings in my life and the ability to find ways to still be productive despite being deaf and blind. I think we all want that for ourselves. The New Year coming also gives us time for reflecting on what we want to change about ourselves and our lives. Often, we keep our reflections to beneficial but more surface aspects such as losing a few pounds or starting a new hobby or learning to lead a less busy life. After a hectic year of fighting some of the usual DeafBlind issues such as needing interpreters for doctor visits and being included in social and family events, I couldn’t help but remember the many comments made to me from readers of this column and comments from others in other DeafBlind venues on forums or Facebook. The common thread I heard was about negative attitudes among not just the hearing/sighted members but also those of other disabled people even DeafBlind people. That saddens me. I, too, have felt the negative attitudes and had hoped my experiences were isolated. For these reasons, my reflections this year turned more outward than inward with the desire of change being for all of us.
The comments seem to relate similar incidents as my own, so I will mention just a few here. I am sure you can relate to a few and add your own. I have encountered the usual hearing/sighted issues that you have read about even here before, but the ones that distress me the most come from other disabled especially other DeafBlind. Many Deaf will not socialize with me except through an interpreter. They actually fear the touch of tactile ASL. A few have even expressed their displeasure that ASL is even used by the DeafBlind at all since these few think it should only be a visual language. Then there are the blind and other disabled who also have disabled parking permits as I do complain that I don’t look handicapped, so I should walk like everyone else. I have my reasons and have had a permit longer than I have been both deaf and blind. It had nothing to do with vision or hearing issues. I do still prefer to use it even for those reasons because of my safety and the safety of my guide dog as I try to harness him and often have almost been hit just trying to get us both out of the vehicle. There are also the few totally blind who feel that those who have some vision shouldn’t be considered part of their group because the ones with some vision still don’t know what it is like to have no sight. Then there are the few Deaf and some DeafBlind who are culturally Deaf and feel that only native ASL signers can be culturally Deaf. I have been deaf since a young child, but I learned to speak and the oral method was the only method available to me because there was no Deaf community near me in the places that we lived as I grew up. You can’t learn what isn’t there, but that doesn’t make my experiences as a deaf child that much different from others except possibly more difficult, since I didn’t have a visual language to build on or a family or community in which I could full participate. Now that I know ASL and wish to practice it more to fluency, I find it disheartening when a DeafBlind person literally pushes my hands away because they realize I am not a native speaker, and they decide they do not wish to have further contact with me. The DeafBlind community is already very small and widely dispersed. When we often don’t fit in with the Deaf community, you would think that we would be happy to share with any other DeafBlind person, since many of us claim that isolation and loneliness are friends we have that we prefer not to have.
My experiences are similar to many others. These experiences are like walls being placed around me keeping me contained in room that seems to grow smaller. Truthfully, I have referred to these experiences as being with negative attitudes, but they are actually nothing more than outright prejudices. A person can be more than just racially prejudiced. Prejudice doesn’t have limitations. Anyone can be prejudiced, and they can be prejudiced about many different things and people. These prejudices against people who don’t sign or didn’t sign until later, who are not totally blind, who don’t look disabled, or others are dividing a small group into even smaller groups and causing even more pain than the society as a whole that tends to ignore us at best. It is often easier to cope with pain from outsiders than from those who are the same or similar. You would also expect that people who have been hurt by others because they are different would have more compassion for others who are different. Sadly, that isn’t always the case. Humans are capable of much pain to each other, and sometimes those who have been hurt can inflict even more on the ones around them.
In addition to the pain caused and the barriers of further isolation that are created, the disabled group that could stand together as one and have a louder and stronger voice is weakened to the point of being inaudible and useless. The good we could achieve for everyone as a whole is diminished to nothing. The one group is broken into so many small slivers that there are too few fighting for a specific issue. As one, we could fight with a strong, loud voice for many issues that would benefit us all. But, no, we can’t do that because we are too full of anger at another who is slightly different to recognize that the other is actually more like us that we could be the same.
Damage caused to our voice by these prejudices is great, and the good we could achieve will continue to be weak and slow. The pain that we cause each other will continue to isolate us more and more until we each stand alone. Does that sound like a future that anyone of us would want? Do we even really want to wish that on someone else just because they are a little different from us?
Reflect on your own attitudes as this year begins to move into Spring, the season of newness. You may not be one of the few are among the ones mentioned here. It is good that I can say it is the “few,” but unfortunately, the few can cause much dissension and create enough chaos amongst the many that little can be achieved. If the few can see that their attitudes are no different and no less harmful than the prejudices of racism to our society and work toward new and positive attitudes toward others, change for good can happen. If the many can be willing to lovingly stand against the prejudices of the few to show that there is a better way, the disabled can come together and work for a brighter future filled with the ability to be independent and productive. I am only one person, but it can start with one. Who will join me?
If you have comments about this topic, you may write a letter in braille or print to Renée Walker, 143 Williamson Dr, Macon, GA 31210; or you may email me at rkwalker@wynfieldca.org. You can also read and comment on my blog at http://www.deafblindhope.wordpress.com. You can also check me out at www.facebook.com/reneekwalker.
Posted in Journal | Tagged Accessibility, attitudes, Audism, blind, Deaf culture, Deaf-Blind, DeafBlind, DeafBlind Hope, guide dog, handicapped, negative attitudes, Prejudice, Support Services Provider, tactile interpreters | 2 Comments »
Well, this post is a look back, but it is written in more of a now time-frame. The last post at HKNC never got written. You see, I spent my last two weeks in New York in the hospital. I came home and was sick with pneumonia yet again. I was still recovering from pneumonia in early February when I had the worse case of vertigo that I have ever had in my life. The doctors were unsure what happened at that time, but evaluations in March with both ENT/audiologist and Retinal Specialist showed that I had significantly lost more hearing and vision. My audiogram showed that I needed more than 120 db of sound to even register that I might have heard something. The line on the graph ran along the bottom of the graph and at times below the graph. In other words, I had been profoundly deaf, now I was even more so to the point of almost hearing nothing. Vision-wise, I had had a 5 degree field at HKNC. I now had 1 degree field with acuity in the remaining field very poor. My life was changing again. What I had feared had now happened. I would never be the same again.
How did this all happen? Well, again we aren’t sure what led to the additional surge of loss in February except possibly extended illness. My last few days at HKNC were spent learning more ASL vocabulary and practicing braille reading fluency. I had already mastered all of contracted braille and could read about 50 words/minute. I needed more practice to improve that. My print reading had been more like speed reading levels, so this is slow and annoying to me, but it is what I will have to deal with and improve as much as possible. On Wednesday or Thursday afternoon, I had a late appointment with my pulmonologist as a follow-up to my previous hospital stay. I left the doctor’s office at 5:45 pm with a clear lung X-ray having been taken and reassurance that I was well and good. After stopping to get something to eat on the way back to HKNC, I arrived at the residence hall at 7:00 or so. I headed down the hall to check in with the nurse, but she was still on break. There were a lot of people in the hall, so I meandered through them and then back through them speaking to anyone I could. I went into my room and booted up the X-Box for some video time and game play with husband and friends. I noticed that I began coughing, but I had no clue what was up. I used my inhaler a few times. I finally went out in the hallway and being able to talk still I asked one of the hearing staff if there was anything going on because I was having a little trouble breathing. They said everything was normal, but then offhandedly said the lounge is closed because they refinished the floors again. I couldn’t smell anything, but I knew that was bad. I said that is it. HKNC maintenance had tried to use the odorless glue, but that doesn’t help those with asthma. I had specifically told the Resident Directors that I could not be around when the floor was refinished again regardless. The odorless glues and paints just get rid of the smells they use to let people know that chemicals are being used. The harmful fumes are actually odorless. Natural Gas is actually odorless. They have to add chemicals with smell to signal gas leaks. I was angry, but I said I would go in my room, use my nebulizer, and keep the door close hoping that would help. The last place I wanted to go was the ER again. I tried these steps including nebulizing double doses twice. By nine, I was in full-blown attack. I called for the nurse signing “nurse” once again to the Path staff across the hall. Nurse came quickly and helped with the nebulizer, but she signed that I wasn’t getting any air. She signed for other staff to call 911. I was unconscious by the time the ambulance arrived. I vaguely remember falling to the bed and someone trying to hold me up. Later, I remember paramedics trying to put the airway tube down my throat. I went out again. They weren’t able to get the airway tube in at all. I had completely closed up. At the ER, I was put in the trauma section and was hooked to all of these monitors. I was listed as non-responsive. They told me later that I did scream when the staff hit a nerve in my wrist trying to get arterial blood to measure my blood gases. I was also later told that my oxygen level was very low and carbon dioxide and other gases that are supposed to be low were higher than normal. Pulmonologist said he had never had the same patient almost die in the span of just a couple of weeks or so. I was in the hospital until Christmas Eve. Doctor was not going to let me go back to HKNC until well after the first of the year. I was still very sick. Despite having a clear lung X-ray that same afternoon that I was admitted to the hospital, I developed pneumonia within less than 24. This was my second bout of pneumonia in a month.
My husband had been trying to get information about my health repeatedly during my hospital stays, but due to privacy laws, the hospital refused to give much information to him over the phone and only told my HKNC case manager that I was doing fine. HKNC staff never did realize how bad off I was either time, I don’t think. I even signed a form specifically stating that I wanted my husband and caseworker to be given full details of my status and treatment. With my husband being in Georgia and not having a home phone (only a school phone), I knew it might be hard for the hospital to get my husband regularly. My case manager would be able to pass on the information if she knew it. I have no idea what happened with that form. I signed it using an interpreter, but it was never put into force. The day before Christmas Eve, I finally got an HKNC staff member visiting me for a while. She helped me call my husband who being worried out of his mind wanted to know if I wanted him to come. I said yes. He quickly packed, got my younger son to stay with the dogs, and drove the rest of the day and evening. The doctor did decide to let me go home to Georgia if my husband was going to take me. I wouldn’t not have been allowed to fly. I was given enough meds and emergency nebulizer equipment to make the trip home and get through the Christmas Day and day after, and copies of all of my hospital and doctor records while in NY. Pulmonologist wanted my home doctors to know just how serious and dangerous my condition was to avoid future issues. My husband took me to HKNC where we packed up all of my belongings including computer and monitors and X-Box that still were not packed, since I had not been there. We slept a few hours and left just before the sun rose. I said good bye to the few residents and staff who were still there for Christmas. I was unable to talk well and didn’t feel well, but I did have a little surge of energy due to the excitement of seeing my husband after six months, being back with my Little Joe who had spent much of his days alone in the dark of my room, and the knowing that I was going home for good having accomplished what I had come to do.
The excitement quickly left me tired and drained as we began driving toward home. I slept all day and evening as Scott drove only stopping to eat, take bathroom breaks for us and Joey, and get gas. I remember very little. Scott seemed terrified. He told me that he was afraid that I would get worse during the trip and not know where to get me help. I just told him that God was with us, so everything would work out. It did. We arrived home after midnight early Christmas Day. After hugging my two sons and being happily greeted by my Hartley Girl, my black lab, Scott and I slept until noon.
I awoke to the smell of Christmas trimmings that my mom had made sure we had and a Christmas tree surrounded by presents. My chest hurt, and I felt like I could sleep for a hundred years, but I was so happy to be home that none of that mattered. Christmas that year couldn’t have been any more perfect. Nothing had changed other than me. No one else knew braille or ASL or even fingerspelling. Communication was still the main issue, but at the moment, all was fine. I just enjoyed the feelings of Love.
Now, of course, the feelings of love and peace at Christmas are wonderful, and you hope that it will last all year round, but reality usually does seep in eventually. By March, after my illnesses and loss of more hearing and vision, I found that now that I knew life could be better for me if people signed and adapted for my needs that I was even more frustrated when they refused or couldn’t. Depression hit me and hit me hard. I withdrew even from my beloved students and staff, and the newly founded DeafBlind Hope seem to almost languish before it even got started other than helping an initial three clients. Family issues grew even worse because I quit trying. Sitting in the chair suddenly sounded good to me, so that is mostly what I did for a while. It was over a year before I began to see a light as God worked within me and sent his earthly angels to lift my soul out of its depths of self-pity.
Arise slowly, I did. I haven’t looked back. There is too much to do.
Now as I finish my look back at HKNC. I hope many that I met there will see this somehow and know that what you did for me there was tremendous, and I will always appreciate your help and friendship. There were way more people that touched me than I could ever mention in my blog, and some didn’t wish to be mentioned at all, but you did touch my heart and will never be forgotten. God bless you all.
Posted in Journal | Tagged braille, Deaf-Blind, DeafBlind, DeafBlind Hope, guide dogs, Helen Keller National Center for the Deaf-Blind, Support Services Provider, tactual interpreters, training | Leave a Comment »
Well, the weather has been frightful, but I have seen more snow than I have ever seen before. Joey has never seen snow before. We had a ball playing in it. Joey running and sliding and I throwing snow over him. He likes to try and catch it.
Training has been more practice of all that I have learned so far. I talk in sign everywhere pretty much. Tactual is still my best mode. In most classes, we are doing the final goals and filling out requistions for my state to authorize payment. I don’t know if my state will pay for everything I need or not, but I hope and pray they do.Jesus has been at work this week through me. I just hope I rose to the occasion as He wanted me to do. One of my instructors actually came to me after hours and asked me to tell her about Jesus. I was ecstatic. How lovely it was to share my love and experiences with her. In case you are wondering, this is not the same person that I have spoken of before. That person is saved and I can tell the person has faith. Jesus has something for that person to do and needs to prepare. The instructor that came to me this week is not from a religious family. She doesn’t know Christ and isn’t even sure there is a God. I hope that I answered her questions, but I hope even more that Jesus was able to work through my answers. I am praying mightily for her to feel Jesus. I can tell that the Holy Spirit is calling her. I just pray that she will accept that call.
We also had a holiday party that was actually a Deaf party. It was fun, but loud. I turned everything off and I left Joey at the center with my friend, Ginger. Basically, they have these very large speakers and some are turned down on the floor so that you feel the vibrations through the floor, tables, everything. I could feel the vibrations all through my body. The Deaf use the vibrations to dance by. It was very interesting.
Saturday, we had another party at a Sportsman’s Lodge near the Long Island Marina. We at HKNC were invited, but it was mostly for the many special needs children from the area. I loved watching the children and adults of various ages with various forms of mental retardation playing and laughing. They all loved Santa and were so appreciative of the hand-knitted afghans we all got. I was too. Mine was a gorgeous lavender, purple, and pink coloration. I really couldn’t see the colors, but the staff described it to me very well. I like those colors. Many of the children wanted to pet Joey. Some were afraid of him, but as usual Joey was perfect with each and every one. He always seems to know how to act. With those who were afraid, he laid down next to them and let them reach to him. With others, he reached up and gave a big “Joey kiss” which is very special, you know. The children’s faces shined as Joey poured out his love for all of them. The others danced for a while. I enjoyed seeing everyone loving moving their bodies to the music in any way they could. I, of course, can always measure my fun level on a scale of 1 to full blown asthma attack. The party made it to full blown asthma attack. Lovely… Actually, what happened was I didn’t know that the lodge allows smoking in the building where they have a bar in the back. There was no smoking at the time, but I can’t be around it at all, so after a couple of hours I couldn’t breathe. We did a nebulizer treatment in the van on the way back to the center. I did a couple upon my return. I eventually got better without going to the hospital. I was very thankful. I have had enough of hospitals for a long while.
Here is the HKNC Christmas tree in the lobby. Next to it is the large paining done by a former totally deaf and blind student. The picture depicts the scene where Helen Keller and Anne Sullivan are at the well with water running over Helen’s hand as “Teacher” as Helen called Anne, fingerspelled “W-A-T-E-R” into Helen’s other hand. Helen’s says this is the moment that her world became alive with the true understanding of language.
"HKNC's Christmas tree in the Lobby along with the painting by a DeafBlind student of Helen at the well.
It began to snow late Saturday night and continued all day Sunday. I got to go to church with my friend and HKNC interpreter, Jessica. Jessica is 24 years old, but very spiritually wise. Her parents and Jesus have done a wonderful job with her. Jessica is Pentecostal, so her church service was a little bit louder than the ones at my Baptist Church. I loved it though. I couldn’t hear the music, so it was hard for me to worship like I normally do. Jessica though tactually signed everything for almost 3 hours so that I could experience things. That may not sound like a big deal to you guys, but interpreting is very tiring mentally and physically. Tactual sign is even more demanding. The interpreters have very strict regulations for when they are working. At HKNC, they do interpreter switches about every 30 mins or so, because it is so demanding of them. Jessica interpreted for me almost continually for about 3 hours. I asked her about half way through if she wanted a break, but she said she was fine. Jessica never complained. That was very special to me.
Well, the good news is that I am beginning my last week here. I don’t know when my flight is yet, but I hope it is Friday, 21st or Saturday morning at the latest. I will update here as soon as I know. That will probably be my last blog, too, since I will have to pack and ship everything before I leave out. The experience has been wonderful, and I have learned so very much. I have friends that I can call lifelong friends, as well. However, I am ready to get home. I have family, friends, and students to get home to. Things will be different, though. Signing has become my main mode of communication, so I hope a few of my close friends are willing to learn some. I am going to need an SSP or Support Services Provider, too. Hopefully, we can find someone to fill that role. Anyway, more on that after Christmas. I just want to get home now. Little Joey wants to play with his sister and brothers and give Daddy a big wet kiss. I do, too.
Take care, everyone!
Renee’ and Little Joey
Posted in Journal | Tagged Deaf-Blind, DeafBlind, DeafBlind Hope, guide dog, Helen Keller, Helen Keller National Center for the Deaf-Blind, Support Services Provider, tactile interpreters, training | Leave a Comment »
I have been unable to post for a while now. I became sicker and sicker with my asthma. I had a migraine for the week after Thanksgiving working on a speech I had been asked to do as keynote speaker for a technology seminar. I never got to give it, unfortunately. Saturday afternoon, I was found on my bed semi-conscious. I had evidently gotten up and tried to ask for help earlier, but I don’t remember it. Little Joe kept trying to push me up and licking my face. His urgency is what got me moving at all I am sure. I spent Saturday thru Wednesday in the hospital with pneumonia and exacerbation of asthma. I had IV antibiotics and IV steroids. I was back at HKNC for 5 hours when they had to return me to the hospital. I came back the next day. I am still confined to my bed and unable to speak because I don’t have enough air, but it is getting better slowly. I am still on steroids. I will say that my signing is getting much better because I have no choice, but to sign everything. I also was unable to hear anything since being profoundly deaf, I have to concentrate to understand. I was totally unable to do that. The hospital had to bring in a tactual sign language interpreter for me. I was able to do it fortunately. God does provide in all things. Pray for me as my chest still hurts and I am still wheezing.
Thank you Jesus for Little Joey.
Posted in Journal | Tagged Deaf-Blind, DeafBlind DeafBlind Hope, guide dog, Helen Keller, Helen Keller National Center for the Deaf-Blind, Support Services Provider, tactile interpreters, training | Leave a Comment »
Retro Look:
This week has been really great. I received a care package from my Sunday School class at Mabel White Baptist Church, and my son, Brian, flew up here to spend Thanksgiving with me. The care package had several items that I have needed such as lip balm and warm slipper socks plus some fun things including sugar free candy and a red University of Georgia cap. The cap was a nice touch. I really appreciated the package. I have a pic where Joey somehow managed to get the hat on his head when I had laid it on the bed next to him. He was so cute. Joey knows how to make me smile just like my friends at church.
Brian flying in was a nice touch, too. He went to classes with me on Tuesday and Wednesday. He asked my instructors questions, and they taught him some signs. The instructors explained to him all about my training and what we could expect as my vision and hearing decrease. Brian was very attentive, and all the staff here said he was a nice young man. They were amazed at how polite he was and that he said, “yes, sir and no, ma’am” to everyone. I was extremely proud of him, of course.
Thursday, my case manager-Molly- took Brian, Martin (another student), and I to have Thanksgiving dinner at the Miller Ridge Inn. It is a replica of an old inn that stood on the property and the history goes back to 1632. They have a replica town of shops that you can walk through as well. We took pictures at the stocks and listened to the band playing guitars and banjos. The food was very good, even the stuffing was good despite not being Southern cornbread dressing. Molly is very special. She really went out of her way to be with us on her holiday off, and I greatly appreciate it. I could tell that Martin, though quiet, really enjoyed it as well. I don’t think he ever gets visitors. I seldom see him talk or smile except when he is talking about sports. Martin is deaf-blind. He hears nothing, but sees a little better than me. He signs for communication; therefore, Molly signed everything we all said during the meal. Molly made sure he was included in everything. That takes a lot of time and patience, but she does it so well. God is truly using her for special work.
That evening Brian and I took dinner up to our room where we had an e-Thanksgiving over the internet on X Box Live with Scott and Brendan at home on their X Box 360. Their food was much better than ours, but the company was great. We spent several hours eating and talking after praying and thanking God for our many blessings. Despite being here and away from friends and family, I actually enjoyed Thanksgiving. You never know what the journey God has you on will bring, but it will always be enlightening and memorable.
I have only been to the city one other time. This past Sunday, we went to Madame Toussaud’s off 42nd Street. We toured the wax museum and could feel the faces and costumes. I have some pics of Joey and me checking things out. The statues seem pretty real.
This is Steffy. She feels the statues with her hands to “see.”
Friday, Brian and I left very early by cab to the Long Island Railroad. We took the LIRR to Penn Station in Manhattan.
Then took the red line down to South Ferry and Battery Park.
There we took pictures of the Statue of Liberty in the New York Bay.
It was about 35 degrees plus very windy. We had wanted to take the boat past the Statue of Liberty and onto Ellis Island, but there was over an hour wait in the cold wind to get tickets. I knew my asthma could not stand that, and Brian said that it was even too cold for him who stays outside in tents 24/7. We took the pictures and headed back to the subway.
This was a weird sight on the way back. The city has overtaken some things.
We rode the subway north to Central Park and toured the Museum of Natural History during the very cold morning.
Afterwards, we ate at the City Grill, which was very good and reasonably priced. I had an Apple Walnut Grilled Chicken Salad similar, but much better than they serve at Applebee’s. My friend, Ruthann, would have loved it. I couldn’t help but to think of her as I savored its flavor. This break gave us all, including Joey, the energy we needed to walk through Central Park. I was really shocked at how beautiful it was, and it was very strange that it was in the middle of one of the world’s largest cities. There are several large reservoirs that they allow boating on. There are pathways galore all mingling around greenways for picnicking and play. There are huge rock outcroppings where children scrambled. It was absolutely gorgeous. We saw many places that we recognized from episodes of CSI: NY, including one that was in this week’s episode that I didn’t get to see until we got back that night and watched it streamed over the internet. The area was a couple of brick terraces overlooking the lake with the lower terrace having a huge fountain next to and overlooking the water.
We exited the park onto 5th Avenue, which is lined with multimillion-dollar apartments along the Central Park border where rich financial executives and many celebrities live.
Strolling south of the park, you find the famous stores and their storefront windows filled with the most expensive and outlandish fashions that I have ever seen in my life. I assure you that I was not the least bit envious. I love my simple life and fashion. If no one else does, that is tough. I have better things to spend my money on like my children, husband, and beautiful students such as ShaynePatrick. They are what make life worth living. We ended the day after dark shooting videos of Times Square
and then walking down 34th Street to Macy’s. Brian grew up loving “The Miracle on 34th Street.” I think he found that some things are better just left for memories. After riding the LIRR back to Port Washington, we ate delicious NY pizza at a local pizzeria before taking the cab back to HKNC. We were all exhausted. Little Joe ate his supper and crashed on the bed with me beside him. I managed to give him a well-deserved massage before calling it a night.
I awoke early at 6:00 am to see Brian off to the airport. He had to be back at work at the wilderness rehab camp in Ga. by 5:00 pm that afternoon. I really loved the fact that he was willing to come up, and we had such a great time. I was reminded of those days after my divorce from his biological father when it was just the two of us. We were so close back then. I hope he felt some of that closeness this week. I know I did.
After he was gone, Joey and I curled up on the bed and slept until noon. I missed breakfast completely. Of course, I merely got up, took a shower, ate lunch, and came back to the room where I slept until dinner at 4:30 pm. I don’t remember ever sleeping that much. It was worth every minute of it, though.
I wasn’t able to make my usual calls to my mom, sister, and Aunt Pat. I really missed that. So, Mom, Traci, and Aunt Pat: I love you, and I hope you had a great Thanksgiving. I also hope my in-laws, Marsha and Aubrey, had a nice Thanksgiving. I love you, guys, too. There was absolutely no cell phone signal the last few days here. We haven’t even had internet service the last couple of days. We have to wait until Technology staff comes back Monday to get it fixed, so this post will be late.
As you can see, there was a lot to be thankful for this Thanksgiving. God is truly good to me. Some may say how can you say that when you are going deaf and blind, but I tell you that I see and hear God now more than I ever have before. Life is filled with heartache and disappointment, but with Jesus living through us, it is also filled with great joy and accomplishment. I love my Jesus with all my heart. I don’t ever want to live again without Him guiding me. He is the reason I bother to wake up every morning. He is the reason I am living. I can do all things through Christ who strengthens me. So can you! Take care this week. I am working hard to come home by Christmas, so keep praying for me. I really need the strength. There is still a lot to learn and overcome.
God bless you,
Renée and Little Joe
P. S. That special person I told you about last week who needed to find their way back to Jesus. Well, they made it to a church this past Sunday. This person almost changed their mind, but prayer helped to get them there. Keep praying for this person. God really has a plan.
Posted in Journal | Tagged Deaf-Blind, DeafBlind, DeafBlind DeafBlind Hope, guide dog, Helen Keller, Helen Keller National Center for the Deaf-Blind, Support Services Provider, training | 1 Comment »





























