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Posts Tagged ‘DeafBlind DeafBlind Hope’


This month on Home and School Mosaics I talk about culture. Most people know that there is a Deaf culture with that capital “D”, but many ask if there is such as thing as DeafBlind culture. I have always said no because there aren’t that many of us, and we seldom meet. A random happening on my Facebook newsfeed got me wondering if that is changing. We all search for our identities. For some, it is easy to find. For others, we go through life not quite fitting in anywhere. For the DeafBlind like me, we seem to be building something new, our own identity. It is a lifestyle based on touch. It is being called Pro-tactile. Come explore with me.

http://homeschoolmosaics.com/deafblind-culture-finding-our-identity-by-touch/

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My purpose in posting this on Homeschool Mosaics was not to just brag about my younger son’s wedding day (which you know we, parents like to do) because if you aren’t involved in the wedding it can be boring hearing about it in great detail, but I wanted to give people a glimpse into my way of experiencing a memorable event, the hard work that tactile ASL interpreters have to do, and the importance of SSPs, interpreters, and people willing to understand the needs of the DeafBlind. I am sharing it now with you, my friends, in the hopes that you will enjoy it, too. Everybody told me they cried, which wasn’t my intent LOL, but I will give you fair warning that some say you might need tissues handy.http://homeschoolmosaics.com/the-wedding/

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Have you ever been told or said that you can’t do something because of limitations or even disabilities? Well, let me share with you what I have learned through my own limitations and disabilities. Check out my post for this month on Homeschool Mosaics and then stick around and check out all the other great and wonderful writers found all in this one terrific place!

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I have missed a few months updating my blogs. I am really sorry. Unfortunately, I have been very ill, and I had emergency surgery a month ago today. I have been told that I almost died. Of course, I am thankful to God that He still has more for me to do, so I am still here. Life is good. I am ready and looking forward to Heaven, but I want to stay here for as long as God will allow me to serve Him. I will now get back to more regular updates of what is going on in my life, homeschooling, and DeafBlind Hope with my journey through the Dark Silence. Today’s post is a little of all three of those.

I have had a few shares of my own column on Homeschool Mosaics, but I haven’t plugged myself. I even missed last month’s post I did because I was having surgery. So, I think I should catch up a little. And don’t forget, there are other writers even more talented and interesting than me on Homeschool Mosaics every day, so check them out, please. I haven’t been able to plug for them due to being so sick and then recovering for surgery. These writers are certainly worth looking into. Now to see my post for last month and this month go to http://www.homeschoolmosaics.com.

My post for May is at http://homeschoolmosaics.com/om-cane-skills/. I hope you enjoy it. I also had a post of my column go live today as well. It is found at http://homeschoolmosaics.com/guide-dogs-the-perfect-upgrade/. I think you will find some uplifting stories here about my wonderful guide dog, Joey.

I will come back soon and tell you about my experiences in the hospital from a disabled perspective.

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Homeschool Mosaics is my newest writing venture and connects in topic to my posts here at DeafBlind Hope: The Journey. I will be writing there about my journey in the Dark Silence as I teach children and help other DeafBlind people. There are many other readers at Mosaics, all from different aspects of life and homeschooling. Come check it out. We are also having a Facebook Launch Party tonight at 8:00 pm EDT with lots of prizes including those from DeafBlind Hope involving braille and ASL. Definitely show up for that! We have lots of big name sponsors for this events. You don’t want to miss it. Oh, and my column’s name is Homeschool Touches: Living and Schooling Through the Dark Silence.
Ok, here are the links: http://www.homeschoolmosaics.com
and https://www.facebook.com/events/230738350358421/
The Homeschool Mosaics Facebook page is https://www.facebook.com/HomeschoolMosaics. Stop by and LIKE us!

I will be there. I hope you will be, too.

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I have been unable to post for a while now. I became sicker and sicker with my asthma. I had a migraine for the week after Thanksgiving working on a speech I had been asked to do as keynote speaker for a technology seminar. I never got to give it, unfortunately. Saturday afternoon, I was found on my bed semi-conscious. I had evidently gotten up and tried to ask for help earlier, but I don’t remember it. Little Joe kept trying to push me up and licking my face. His urgency is what got me moving at all I am sure. I spent Saturday thru Wednesday in the hospital with pneumonia and exacerbation of asthma. I had IV antibiotics and IV steroids. I was back at HKNC for 5 hours when they had to return me to the hospital. I came back the next day. I am still confined to my bed and unable to speak because I don’t have enough air, but it is getting better slowly. I am still on steroids. I will say that my signing is getting much better because I have no choice, but to sign everything. I also was unable to hear anything since being profoundly deaf, I have to concentrate to understand. I was totally unable to do that. The hospital had to bring in a tactual sign language interpreter for me. I was able to do it fortunately. God does provide in all things. Pray for me as my chest still hurts and I am still wheezing.

Thank you Jesus for Little Joey.

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Retro Look:

This week has been really great. I received a care package from my Sunday School class at Mabel White Baptist Church, and my son, Brian, flew up here to spend Thanksgiving with me. The care package had several items that I have needed such as lip balm and warm slipper socks plus some fun things including sugar free candy and a red University of Georgia cap. The cap was a nice touch. I really appreciated the package. I have a pic where Joey somehow managed to get the hat on his head when I had laid it on the bed next to him. He was so cute. Joey knows how to make me smile just like my friends at church.

Brian flying in was a nice touch, too. He went to classes with me on Tuesday and Wednesday. He asked my instructors questions, and they taught him some signs. The instructors explained to him all about my training and what we could expect as my vision and hearing decrease. Brian was very attentive, and all the staff here said he was a nice young man. They were amazed at how polite he was and that he said, “yes, sir and no, ma’am” to everyone. I was extremely proud of him, of course.

Thursday, my case manager-Molly- took Brian, Martin (another student), and I to have Thanksgiving dinner at the Miller Ridge Inn. It is a replica of an old inn that stood on the property and the history goes back to 1632. They have a replica town of shops that you can walk through as well. We took pictures at the stocks and listened to the band playing guitars and banjos. The food was very good, even the stuffing was good despite not being Southern cornbread dressing. Molly is very special. She really went out of her way to be with us on her holiday off, and I greatly appreciate it. I could tell that Martin, though quiet, really enjoyed it as well. I don’t think he ever gets visitors. I seldom see him talk or smile except when he is talking about sports. Martin is deaf-blind. He hears nothing, but sees a little better than me. He signs for communication; therefore, Molly signed everything we all said during the meal. Molly made sure he was included in everything. That takes a lot of time and patience, but she does it so well. God is truly using her for special work.

Brian, Joey, and I standing behind photo props making us look dressed in long dress and tux.

"Brian, Joey, and I looking dressed to kill."

Molly and Martin in the stocks like prisoners.

"Molly and Martin in the stocks."

Brian, Joey, and I in the stocks.

"Brian, Joey, and I in the stocks."

That evening Brian and I took dinner up to our room where we had an e-Thanksgiving over the internet on X Box Live with Scott and Brendan at home on their X Box 360. Their food was much better than ours, but the company was great. We spent several hours eating and talking after praying and thanking God for our many blessings. Despite being here and away from friends and family, I actually enjoyed Thanksgiving. You never know what the journey God has you on will bring, but it will always be enlightening and memorable.

I am standing next to the image of Albert Einstein.

It's just Albert and I.

I have only been to the city one other time. This past Sunday, we went to Madame Toussaud’s off 42nd Street. We toured the wax museum and could feel the faces and costumes. I have some pics of Joey and me checking things out. The statues seem pretty real.

HKNC Students standing next to Helen Keller wax figure which is sitting holding a book that has braille dots on it.

"HKNC students with Helen Keller. The book she is holding has real braille dots on it"

This is Steffy. She feels the statues with her hands to “see.”

Steffy is feeling Robin Williams' wax figure in order to see him.

"Steffy is feeling Robin Williams' wax figure in order to see him."

Yes, some blind really do this despite the TV jokes you might hear. DB tend to do it a little more, but I would say it is only for people we really care about wanting to know exactly what they look like.
Friday, Brian and I left very early by cab to the Long Island Railroad. We took the LIRR to Penn Station in Manhattan.
Penn Station

"Penn Station"


Then took the red line down to South Ferry and Battery Park.
Battery Park

"Battery Park"

There we took pictures of the Statue of Liberty in the New York Bay.

Statue of Liberty

"Statue of Liberty"

This is my son, Brian, with the water behind him.

"This is my son, Brian."

 It was about 35 degrees plus very windy. We had wanted to take the boat past the Statue of Liberty and onto Ellis Island, but there was over an hour wait in the cold wind to get tickets. I knew my asthma could not stand that, and Brian said that it was even too cold for him who stays outside in tents 24/7. We took the pictures and headed back to the subway.
This was a weird sight on the way back. The city has overtaken some things.

There is this older, very small building right next to a skyscraper. It looks so out of place.

"This building just doesn't look like it belongs there.

We rode the subway north to Central Park and toured the Museum of Natural History during the very cold morning.

Natural History Museum

"Natural History Museum"

Afterwards, we ate at the City Grill, which was very good and reasonably priced. I had an Apple Walnut Grilled Chicken Salad similar, but much better than they serve at Applebee’s. My friend, Ruthann, would have loved it. I couldn’t help but to think of her as I savored its flavor. This break gave us all, including Joey, the energy we needed to walk through Central Park. I was really shocked at how beautiful it was, and it was very strange that it was in the middle of one of the world’s largest cities. There are several large reservoirs that they allow boating on. There are pathways galore all mingling around greenways for picnicking and play. There are huge rock outcroppings where children scrambled. It was absolutely gorgeous. We saw many places that we recognized from episodes of CSI: NY, including one that was in this week’s episode that I didn’t get to see until we got back that night and watched it streamed over the internet. The area was a couple of brick terraces overlooking the lake with the lower terrace having a huge fountain next to and overlooking the water.

Manhattan Cafe where we ate.

"Manhattan Cafe where we ate."

We exited the park onto 5th Avenue, which is lined with multimillion-dollar apartments along the Central Park border where rich financial executives and many celebrities live.

5th Ave apartments in Manhattan

"5th Ave apartments in Manhattan."

Strolling south of the park, you find the famous stores and their storefront windows filled with the most expensive and outlandish fashions that I have ever seen in my life. I assure you that I was not the least bit envious. I love my simple life and fashion. If no one else does, that is tough. I have better things to spend my money on like my children, husband, and beautiful students such as ShaynePatrick. They are what make life worth living. We ended the day after dark shooting videos of Times Square

and then walking down 34th Street to Macy’s. Brian grew up loving “The Miracle on 34th Street.” I think he found that some things are better just left for memories. After riding the LIRR back to Port Washington, we ate delicious NY pizza at a local pizzeria before taking the cab back to HKNC. We were all exhausted. Little Joe ate his supper and crashed on the bed with me beside him. I managed to give him a well-deserved massage before calling it a night.

I awoke early at 6:00 am to see Brian off to the airport. He had to be back at work at the wilderness rehab camp in Ga. by 5:00 pm that afternoon. I really loved the fact that he was willing to come up, and we had such a great time. I was reminded of those days after my divorce from his biological father when it was just the two of us. We were so close back then. I hope he felt some of that closeness this week. I know I did.

After he was gone, Joey and I curled up on the bed and slept until noon. I missed breakfast completely. Of course, I merely got up, took a shower, ate lunch, and came back to the room where I slept until dinner at 4:30 pm. I don’t remember ever sleeping that much. It was worth every minute of it, though.

I wasn’t able to make my usual calls to my mom, sister, and Aunt Pat. I really missed that. So, Mom, Traci, and Aunt Pat: I love you, and I hope you had a great Thanksgiving. I also hope my in-laws, Marsha and Aubrey, had a nice Thanksgiving. I love you, guys, too. There was absolutely no cell phone signal the last few days here. We haven’t even had internet service the last couple of days. We have to wait until Technology staff comes back Monday to get it fixed, so this post will be late.

As you can see, there was a lot to be thankful for this Thanksgiving. God is truly good to me. Some may say how can you say that when you are going deaf and blind, but I tell you that I see and hear God now more than I ever have before. Life is filled with heartache and disappointment, but with Jesus living through us, it is also filled with great joy and accomplishment. I love my Jesus with all my heart. I don’t ever want to live again without Him guiding me. He is the reason I bother to wake up every morning. He is the reason I am living. I can do all things through Christ who strengthens me. So can you! Take care this week. I am working hard to come home by Christmas, so keep praying for me. I really need the strength. There is still a lot to learn and overcome.

God bless you,

Renée and Little Joe

P. S. That special person I told you about last week who needed to find their way back to Jesus. Well, they made it to a church this past Sunday. This person almost changed their mind, but prayer helped to get them there. Keep praying for this person. God really has a plan.

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